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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)

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@brendakaye

I have just joined this group. I am 70 years old and have had diabetes for about 30 years. I have had neuropathy in my feet that has gotten progressively worse over time. Gabapentin does not seem to help but the pain has been tolerable. But lately I’ve started having terrible pain in both of my hands. It seems to be worse at night and is becoming intolerable.

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Replies to "I have just joined this group. I am 70 years old and have had diabetes for..."

Hello @brendakaye !
Welcome to our group! Although we are not medical people, we are all experiencing neuropathy of some kind, to some degree.
We will share our stories with you.
Hopefully, we will be able to share something that will help you.
If not, we are still here to lend an ear and thought.

I just developed neuropathy in my feet a year ago.
Over the last months, it has gotten worse, especially in my right foot.
I use a cane and brace.
Doctors do not know WHY it developed since I do not have any known condition that usually contributes like diabetes.

For me, I find that massage helps!
I have the therapist work on my legs and feet.
It feels great!
Thank goodness I don't have pain!

Happy 4th of July,
Ronnie (GRANDMAr)

Hello @brendakaye, I would like to add my welcome to Connect along with @grandmar and other members. I have had small fiber peripheral neuropathy for 20+ years but only bothered to get a diagnosis a few years ago. I posted my story earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985.

I'm glad you found us and are searching for answers on how to help your neuropathy. Here is another discussion that you may be interested in joining:

> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

You mentioned that you also have diabetes. Have you been able to keep the diabetes under control?

I'm tagging @retiredteacher @artscaping @jenniferhunter who may also have some suggestions for you.

@brendakaye Welcome to the group. My primary problem is Diabetes, but I was diagnosed only three years ago. I am 75 years old and was very healthy until that diagnosis. I do not take any meds for the diabetes---diet and exercise. Of late I have had a hard time with the soles of my feet. I feel as if I'm walking on shards of glass. It's very uncomfortable trying to do anything. Some days are worse than others. I diagnosed myself with neuropathy. I would not take any meds for that. Meds have too many side effects that cause other problems for me. I also have arthritis in my hands. They are always sore and swollen. I will ask about my feet and hands when I go to my endo appointment in several weeks. I understand how hard it is to go 24/7 with this kind of pain as do others on this forum. I have read the posts and most people have found little that really helps. I don't know what the answer is, but maybe my endo can shed some light. Do you notice the joints in your hands are swollen? If you warm your hands does that lessen the pain? Have you seen your doctor for your hands?

I wish I could tell you things will improve, and they might, but your doctor needs to know what's going on.
Carol @retiredteacher