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My Autoimmune Journey: From 1:5120 to 1:320 ANA

Autoimmune Diseases | Last Active: May 16 6:43am | Replies (37)

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@lilytexas last summer I started with a dry cough, and shortness of breath and I developed mechanics hands, the condition evolved to NSIP and a ct scan revealed ILD, pages of blood tests done and Bronchoscopy later and myo marker panel came back positive with Antisynthatase PL7(which is pretty rare). My ANA was 1.16(almost normal) essentially my immune system began attacking my lungs. I went on oxygen concentrators for a few months. They prescribed heavy doses of predinisone and put me on Mycophenolate Mofetil. It’s taken almost a year but things beginning to get close to my baseline. Wishing you the best and I know first hand the anxiety that comes with what you’re enduring.

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Replies to "@lilytexas last summer I started with a dry cough, and shortness of breath and I developed..."

@rbear Thanks for sharing. I have a similar journey except started with skin, joints, then, ILD. Been on Mycophenolate Mofetil for ~15 months now. Lungs and skin have stabilized, which is good. I have ongoing muscle weakness in my legs - quads, gluts, et al. Had MRIs, EMG and they don't see inflammation, just some tendinosis and myopathy. Off to PT I go. I'm normally a very active person - tennis, golf, run, gym regularly. This muscle problem has hampered all my physical activities. Anyone experiencing anything similar? Any advice on relief?