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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@jola65

Hi I’m 53 years old woman with no hope for tomorrow please help if anyone knows anything please share.
Beginning of the symptoms started 10 years ago positional vertigo tinnitus tingling in my feet and hands and then it progressed to severe pain all over the body burning sensation extremely intense electric shock like severe sensation running through my body from top to bottom tingling numbness brain fog Trouble concentrating. Feet legs hands and arms extreme numbness that stays four hours. It spreads to upper back shoulders and side of my face nothing helps to relieve the symptoms. Red purple feet hands and nose at the time burning increases to unbearable. Chronic constipation happens all the time. Sleep problems pain wakes me up around 4 AM and then I can fall back asleep, cause me to feel tired throughout the day and then I take naps .
When I nap during the day I feel my pain increasing to such extreme levels but I cannot wake up from it. I feel tremors in my body as if I was cold but I am not called this only happens during the daytime naps not at night. Tinnitus is not as bad as before gabapentin and Cymbalta helps a little. A lingering tiredness and feeling drained like having the flu fatigue to the point that I can’t do anything my muscles are not week because I know I am strong but I don’t feel like I have enough energy to do anything and the pain makes me feel almost like I run a marathon . I feel like I have no control over my body, mind for future. The stress with pain physical changes and managing daily life, makes me sad worried and depressed. Overwhelmed with axiety and depression, struggle to cope. 😓

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Replies to "Hi I’m 53 years old woman with no hope for tomorrow please help if anyone knows..."

Hello @jola65, there is another discussion for neuropathy where your post will receive more visibility. I'm tagging our director @colleenyoung to see if we should move your post to the following discussion.

> Groups > Neuropathy > Living with Neuropathy - Welcome to the group
-- https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

You posted in an earlier post that you had an upcoming appointment at Mayo Clinic. Have you had the appointment yet? Did you receive a diagnosis?

Actually my apt is tomorrow. I’m excited about it and nerves at the same time.

Hi @jola65, as @johnbishop suggested, I've moved your message to the introductions discussions where you'll meet others living with neuropathy. Jola, it sounds like you have a lot going on. I wish you all the best for your appointment tomorrow. I hope this is the beginning of finding some answers and solutions for relieving the pain and other symptoms. We'll be thinking of you. I hope you'll let us know how you are doing when you are able.