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Anyone living long-term with DIPNECH on lungs?
Neuroendocrine Tumors (NETs) | Last Active: 5 days ago | Replies (77)Comment receiving replies
@californiazebra I went to the Pulmonology. He is having to do Flonase, an allergy pill, and an inhaler, both Symbicort and Albuterol. None of them stops the coughing. I am having a Pulmonary function test next month and a PET CT Dotatate to see if I have any cancer that might of returned in the lung.
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@mbarreras
Good luck. So frustrating for you. I was told with DIPNECH, it’s not the nodules we can see causing the cough, it’s the hundreds of tiny nodules in the airways that are too small to see on a scan that cause the symptoms. Hope they figure it out. 🙏