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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 2 days ago | Replies (6026)Comment receiving replies
Hello Mat @mathewv -- Welcome to Connect. I'm tagging our moderator @lisalucier to see if we should move your post to the following discussion where it will receive more visibility.
> Groups > Neuropathy > Living with Neuropathy - Welcome to the group
-- https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
I also have small fiber peripheral neuropathy but don't have pain with it. I only have the numbness. I posted what helps me earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985.
You may also be interested in the following discussions on Connect:
> Groups > Sleep Health > Restless Leg Syndrome
-- https://connect.mayoclinic.org/discussion/restless-leg-syndrome-2a74e5/
> Groups > Neuropathy > Calmare (scrambler) Therapy anyone?
-- https://connect.mayoclinic.org/discussion/calmare-scrambler-therapy-anyone/
> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
Have you found any treatment that gives you some relief?
Replies to "Hello Mat @mathewv -- Welcome to Connect. I'm tagging our moderator @lisalucier to see if we..."
I just joined that Facebook group, although I'm a little confused as to what it's all about. Is it just taking a certain regimen of vitamins and supplements. If so, why not simply list everything that should be taken?
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Hi John. I'm okay when I'm in motion. Exercise helps. I only seem to notice the symptoms when I'm at rest, particularly when I'm sitting. I don't feel pain either, just an aggravating burning sensation. It's worse at work sitting in front of a computer than when I'm stretched out in my recliner watching tv at home. It also tends to flare up when I'm particularly stressed out, which happens often since I've also been diagnosed with generalized anxiety disorder!
Meditation helps but it's no cure. Taking lots of Lyrica helps, as does Xanax, but obviously neither is the permanent, long-lasting solution I'm looking for. I'm at a loss. I really don't know what to do. That's why I'm here.
Mat