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DiscussionLong Story--Sorry What Questions Should I Ask the Rheumatologist?
Autoimmune Diseases | Last Active: May 16 6:11pm | Replies (21)Comment receiving replies
Replies to "I feel your pain! I I had very little faith in doctors also, particularly rheumatologists, because..."
@marpar123
I'm not sure whether I've already posted this before, but it may provide some additional information for your next appointment.
Sjögren's Syndrome (SjS): Understanding the Worst Symptoms and Potential Complications
https://swaresearch.blogspot.com/2024/07/sjogrens-syndrome-understanding-worst.html
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@marpar123 Thank you for the reply. I hadn't thought of using Dr. Google to formulate a list of questions 🙂 .
I'm sorry that you were told your symptoms were "all in your head". I forgot to add my favorite comment in my original post--"Or we could just all put it down to you being blonde". That was the last time I went to that doctor--he "retired" (I am guessing forcibly) shortly thereafter. Yes, I am blonde, and I just forget to breathe sometimes.
When sjogren's antibodies showed up in the report, I had to look the disease up. I had never heard of it and honestly have none of the symptoms. I did have a chest CT last year. The report came back that the ascending aorta was enlarged (dr. read that and said "well it's not an aneurysm yet) and several calcified granulomas and calcifications on the hilar lymph nodes.
If I may ask, how did yours present in your lungs?