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skhenderson54 avatar

oncotype RS of 27

Breast Cancer | Last Active: May 17 9:15am | Replies (15)

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Profile picture for mistymar @mistymar

I was diagnosed at 70 with grade 2 idc. Lumpectomy/clean margins and lymph nodes clear. But high Ki67 (like you started smaller and grew by time surgery 6 weeks later) and oncotype 28. Told it increased possible distant mets by 17-20% but chemo would take it to < 1% for 9 years. I did elect to do chemo but it is all rock vs hard place. If I elected not to do it and developed new tumor in a couple years, then too late to reconsider. I didn’t want to go,through all this again if I didn’t have to. My problem with a second opinion is the decision if it’s adverse to initial opinion - which one is more “right”. To me one would need at least 3 and take majority opinion. I felt secure with my oncologist and elected to follow his recommendation. Would I again? Don’t know. The chemo caused some ongoing problems that are worse with the ai therapy. That’s my current problem and I have discussed it with him about decreasing dose, stopping medication for better quality of life etc., but he discusses standard of care. Again, I could find another oncologist who says my chances are low and with my age, I should just stop medication BUT again, if another tumor develops, I’m back at square one saying, I should have taken the medication - it was only 5 years. I understand this is all a personal decision and a trust situation and my choice is to do what they (and my research) indicates may work best.

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Replies to "I was diagnosed at 70 with grade 2 idc. Lumpectomy/clean margins and lymph nodes clear. But..."

@mistymar yes, I hear you. My take is slightly different because yes, in theory, having 2 opposing recommendations seems like a coin toss, but for me, it went deeper than that. The second oncologist that I consulted explained my situation to me in such a different way, I knew without question that she would be the better option. It was so gratifying & comfortable. A huge relief. A few tears spilled out! But I was probably just lucky. Also, for the record (food for thought) I take a half-dose (10 mg) of Tamoxifen to protect my bones & no real side effects. Sending good thoughts to you!