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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 5 days ago | Replies (5972)

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@kanaazpereira

Welcome to Connect, @gmaoffour,

Unfortunately, neuropathic pain after spinal surgery, (also called failed back surgery syndrome FBSS), happens all too often. @sheriatrapidcit @jenniferhunter @suerc @lynn12 @salsa @beckyann @tom2017 and many others have recently shared their experiences in this discussion, as well:
– Chronic pain and spinal fusion https://connect.mayoclinic.org/discussion/chronic-pain-and-spinal-fusion/

@gmaoffour, could you share a few more details? How are you managing the pain? Has anything helped to give you temporary relief?

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Replies to "Welcome to Connect, @gmaoffour, Unfortunately, neuropathic pain after spinal surgery, (also called failed back surgery syndrome..."

@kanaazpereira
Hi!
That is very interesting!
I had cervical surgery the end of February 2018.
I had C5/6 replaced.
My pain went away and all the other symptoms.
The recovery was a snap.
Then in June 2018, I noticed, when my foot was flat, that I could not move my foot from side to side.
I also noticed my big toe felt a bit numb.
I started to feel like my toes and the ball of my foot were getting numb, but I was still able to move my toes.
I couldn't however, stand on my toes or the heals of my foot.
I then had my lumbar surgery October 2018.
My legs became weak, my big toe no longer moves and my toes and the ball of my foot are numb, but I can still wiggle my toes a bit.
I am now having issues with my left foot, too.
It is not as bad as the right foot, but I am sure it will catch up.
My neurosurgeon is stumped.
He sent me to a neurologist for an eval and for nerve tests.
I do have severe nerve damage in both legs, but not the ones that lead to the feet.
He send me to a vascular surgone for an eval and vascular tests.
I do have a blockage in each leg but that only accounts for the swelling.
I had an ablation on my right foot but it did not seem to help.
Will see the doc again, soon..
As a last resort, I am having a brain scan to make sure I haven't had a stroke or that there is something else going on in there.
I am just waiting for the insurance to approve it.
I've also had a bunch of other tests.
I am mystifying the docs!
So, I wear a brace when I do a lot of walking and that helps a lot!
I am sure I'll need one for my left foot, too, sooner or later.
I also use a cane.
I am going to start PT, again, this time to try to help with my balance since I've fallen a few times.

Well, that's my story and I'm sticking to it (LOL)!
Have a great evening!
Ronnie (GRANDMAr)