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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 5 days ago | Replies (5972)Comment receiving replies
Hi Colleen, Thank you for letting me join the group. I already appreciate some of the article I read that came from John. Just trying to stay informed because I need to look out for myself. After a car accident in 2009 had surgery woke up and had erb’s palsy. Have more movement after physical therapy but has never regained strength and struggle to even hold a coffee mug. Because of the nerve damage I also have PN And really bad pain everywhere chronic pain, chronic, fatigue.
Doctor just checks and does normal things but pretty much told me find your new normal and except it. I’m trying and don’t want things not to get worst so I am listening and seeing what others have tried and what I tried and we all have to say.
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@cocodab
You are not alone! There are many helpful people on here so you're in the right place! Sometimes it just feels good to chat with someone that is going through the same things you are. Here is my advice to you.
Your team of doctors will probably need to include a PCP that supports your issues and strives to find treatment for you, a pain management doctor, a neurologist, and a physical therapist. Integrative/holistic providers will do a world of wonders for you as well. You may also want to consider a mental health provider if your symptoms are causing depression or anxiety. Find a good physical therapist that is up to date on new procedures, and continues to take classes to learn more. The right one will help with the neuropathy & muscle pain. Also, maybe it's just time to look for a new doctor. Research them online and read their reviews. In my area I've found that the good ones are booked out a couple months but probably worth the wait. I'm currently looking for a neurologist. Ask all questions you have and don't settle for a doctor that ignores your concerns! You are your own best advocate! The more research you do, the more questions you ask, the more answers you'll get. Hang in there & take care!