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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
@confused1955, I have a severe case of sfn and Erythromelagia in my feet. I understand your pain all too well. If I take a shower I am in agony all day from the warm water. The meds I take don’t work well, Gabapentin and Amitriptyline. There are many days I wish that I could be on a morphine drip because of the agony. I have not been given any kind of narcotics for pain management. The doctors want me to wean off the amitriptyline and try Cymbalta. I don’t think I could stand the weaning off period because the pain is at a 10 now for a good part of the day. I feel so awful for my husband and family because it’s not fair to them. I’m not functional any longer and I live in fear. Do you have CRPS in both hands? My feet get cold and hot and red, and when they are hanging down they turn purple. I have to keep them elevated most of the day. Do you have twitching in your hands? My left foot twitches all the time. I’m so sorry and I know how difficult it is to endure.
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Yes it's in both hands. It feels like an open sore with alcohol being poured on them. I'm on 3600mg of gabapentin a day. I wish I had never started. I have tried a couple of times to go off. I also take 9mg hydromorph contin. Slow acting Dilauded as well a 4 ...2mg Dilauded spread through the day. I can ask for anything for pain but they all make me constipated so sometime I don't even take all 4 because I'm afraid of the bowel issues. I got a prescription for Cymbalta came home and first read that I have 4 other meds you can't take with it. Then I started reading about it and there was no way I was going to take that. My specialist and primary both say they will never let me suffer but I do everyday but I'm only suffering not dying so I'm not eligible for dying with Dignity. Not sure what I did in my life to deserve this then I see pictures of children with it. I'm almost 65 I don't have as many years to suffer but the little ones have nothing to look forward to.