@cman55 Thanks again for the info. One important thing I have learned is that ice, even though it might feel as if it makes things better, it actually makes things worse. If she experiences burning in one or more of her extremities, this certainly suggests nerve damage. Furthermore nerve damage often leads to vasoconstriction, ie your nerves that normally control blood flow is now comprised. The limb basically gets chocked from its blood flow which makes the limb feel like it is burning but the affected limb is actually stone cold. Ice on
the limb may likely actually increase pain and make things worse; ice furter exasperates the said vaso constriction and I learned this the hard way. I used ice bags constantly in the beginning of my crps journey and it only made things worse. Ironically heat works better for nerve damaged limbs, at least this is my experience.
Lastly, I did understand that your wife had regular leads on her scs. I would still be sceptical to getting paddle leads especially given how poorly she is responding to the regular leads. It is also, as you know, a lot more invasive as they chip off a piece of bone to connect the leads…I understand that your docs want to try this route, I just worry about the torture and post op pain she’ll have to deal with and I just find it hard to believe that paddles is the fix to her issues. Have ya’ll discussed intrathecal pain pumps? If the scs fails she might be a good candidate for it. I’m sure you have looked into it..I havw both an Abbott SCS and a Medtronics pain pump so feel free to dm me or ask any questions you might have. I appreciate how stressful this situation is for you both and if there is anything I can do to
help then I am happy to.
Stay safe and I send you my best wishes