← Return to Spasms after Whipple

Discussion
carfbuch avatar

Spasms after Whipple

Pancreatic Cancer | Last Active: May 17 6:57am | Replies (57)

Comment receiving replies
Profile picture for grandmahiker @grandmahiker

Abraxane and gemcetibene, or however you spell them. We didnt look at any markers that i know of. I assume they worked for me because, with the Whipple, I am cancer free to this point. my CA19-9 ( is that what you meant by a marker) dropped right away and stayed down.
Oddly, to me, my liver enxymes have yet to all be within normal range. And i do appear to have a liver issue that may or may not be related to the cancer or the treatment. The small ends of the duct system are partially blocked and sometimes cause issues.

Jump to this post


Replies to "Abraxane and gemcetibene, or however you spell them. We didnt look at any markers that i..."

@grandmahiker

Thanks for sharing about which chemo tx.

Genetic testing is helpful for family members to know if there’s a gene mutation to try to identify a targeted chemotherapy to use. Like with people having a BRCA2 mutation, cisplatin has been shown to be effective in a recent Mayo Clinic study.
I am afraid of chemotherapy personally as I am underweight and currently having a hard time keeping any muscle (although on high protein/high calories/hand weights/whey plus everything healthy to add weight shakes prior Whipple. I also have mild neuropathy in my hands, so I personally would need to avoid oxyplatin from studies Showing a connection. Thanks again for responding. I wish you the best.

@grandmahiker PanCAN is a wonderful organization that offers a free program called “know your tumor” if biopsy sent and examine tissue for any biomarkers in the blood that could help w/ treatment options. They are very helpful when calling and with emailing you names of top specialists in each state, etc. If you haven’t already, I would give them a call or look them up online and read about them.:)