← Return to What are the most recent treatments for Large fiber neuropathy

Discussion
Comment receiving replies
Profile picture for aljohnson1949 @aljohnson1949

I too worry about balance issues and what the long-term impact is going to be. I'm 77 years old and my only hope is to outlive this condition and just maybe, just maybe there will be some discoveries in the near future on how to cope and lessen the impact of this debilitating disease. I guess I can refer to it as being a disease. I also have continued to exercise daily and still find that stretching is my best friend. I plan to start a Tai Chi class in a few weeks and hoping that this will improve my balance issues.

Jump to this post


Replies to "I too worry about balance issues and what the long-term impact is going to be. I'm..."

@aljohnson1949 I was diagnosed with PN 5 years ago. The usual, feet burning, legs burning, bee sting type feeling in my legs and weakness. The PN is now starting to cause me to lose my balance. I now rely on a walker and cane. I use the walker for my "in house" walking, and I use my cane for outside walking (shopping, doc appointments etc.) And, yes, I do refer to PN as a DISEASE. An incurable, so far, disease. I read up on just about anything I can in the new technology in regard to PN...but NO CURE so far. I/we just have to try to find the best help for the PAIN associated with PN and that is almost impossible. My neuropathy pain doctor is now trying to get a PAIN PUMP approved by my insurance and if insurance approved, will have the PAIN PUMP surgically put into my left hip. So now it is WAIT TIME for me