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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@johnbishop

Hi @chattty, welcome to Connect. I also have neuropathy but only have the associated numbness and no pain. I have no medical training or background but do think that when there is a risk with some treatments and the patient has to be involved in the decision whether to have the treatment or not. I'm sorry that your neuropathy may have be caused by the Levaquin treatment for pneumonia. It's hard to know the outcome had you not had the treatment. There is a lot of evidence that supports your thinking of what caused your neuropathy.

FDA Drug Safety Communication: FDA requires label changes to warn of risk for possibly permanent
nerve damage from antibacterial fluoroquinolone drugs taken by mouth or by injection (PDF)
-- https://www.fda.gov/media/86575/download

Are you on any treatments or therapy to help with the pain from your neuropathy? I have idiopathic small fiber peripheral neuropathy. You can read my story and what has helped me in a post earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

Hope you find some answers.

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Replies to "Hi @chattty, welcome to Connect. I also have neuropathy but only have the associated numbness and..."

Thank you for the welcome and the links.i read up on the FB page. Good for you! I’m very happy it is helping you! Truly. I’m scared of that. I’m opioids, lots of gabapentin, and tizanidine. I’m afraid of the withdrawals. I’m going to get off the gabapentin because of the twitches in my brain and body that make me fall to the ground. I went through some withdrawals in July on my birthday to be exact it was horrible. I don’t have money or the patience for what that website is suggesting. It looks very expensive and tedious. I’m glad it works for you. Right now I’m not up for it. Maybe in the future though.