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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 22 hours ago | Replies (6161)
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@chattty

Hi I’m Cathy and 57 Years of age. I’ve been told I have peripheral neuropathy of which I sincerely believe is wrong. I had diabetes for a few years never out of control, always borderline. I instead believe I got it from the drug levaquin I received in the hospital for pneumonia. It started as soon as I got out of the hospital. Needless to say I have it.i can’t get rid of it and I need to learn to live with it. Which is why I’m here. I think I’m going bonkers I’m in so much pain. Started in my toes then whole feet and almost to my knees. Started in my fingers up my both sides now. I believe it will kill me. That’s all.

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Replies to "Hi I’m Cathy and 57 Years of age. I’ve been told I have peripheral neuropathy of..."
chattty | @chattty | May 22, 2019

So no replies yet? I’m sort of sad as I could really use a friend with this.

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John, Volunteer Mentor | @johnbishop | May 22, 2019

Hi @chattty, welcome to Connect. I also have neuropathy but only have the associated numbness and no pain. I have no medical training or background but do think that when there is a risk with some treatments and the patient has to be involved in the decision whether to have the treatment or not. I'm sorry that your neuropathy may have be caused by the Levaquin treatment for pneumonia. It's hard to know the outcome had you not had the treatment. There is a lot of evidence that supports your thinking of what caused your neuropathy.

FDA Drug Safety Communication: FDA requires label changes to warn of risk for possibly permanent
nerve damage from antibacterial fluoroquinolone drugs taken by mouth or by injection (PDF)
-- https://www.fda.gov/media/86575/download

Are you on any treatments or therapy to help with the pain from your neuropathy? I have idiopathic small fiber peripheral neuropathy. You can read my story and what has helped me in a post earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

Hope you find some answers.

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