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Weaning off keppra protocol?

Epilepsy & Seizures | Last Active: 5 hours ago | Replies (87)

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@keeg1010

Hi Kerry,

Yes! A bucket of 8 pieces for $10. OMG! I can only smile and dream, with mouth drooling. If that's to be a single day promotion over here, I can assure you queue will form outside every KFC outlet in the country. I had heard of In & Out, it just hasn't landed on our shores yet. The day it does? Trust me. There's going to be a queue. One weird manner Singaporean is we love to queue. The new iPhone? Yeah we queue. We are nuts, I know. Even without epilepsy. If you have the chance, come visit south east Asia. Every country has respective amazing own cuisine (I doubt you will fly 10k miles to eat KFC) and there's just so much to see/do at a decent price.

Yes, apartments are small here, and it's 99 years leasehold. A house at 1450sqft sounds pretty decent, since it's a chore to clean up a big place. Yup, unfortunately spaces for living here ain't big and that's why some of my friends went to Australia and are so happy there.

Something bigger may be meant for Keegan, just that he hasn't encountered it yet. Can you imagine both Elton John and Agatha Christie battle epilepsy? The home he's at home is a good idea. He can interact with others in a safe environment, and he genuinely loves his parents' company. You and your husband's!

All of us have to appreciate the little things in life (just act innocent when you can with your doctor if you have to about those KFCs). I hadn't touched single drop of alcohol for almost 10 years now due to possible clash with medication, unfortunately.

@santosh099 This is to Chris as well. It's been 3 night of consuming 50mg of Briviact per night. I am glad to say there's no major side effect like suicidal thought or binging on KFC. The side effects I felt for the past few days are the normal ones I would feel when consuming any AEM, so nothing to worry there. We are 12 hours ahead of the East Coast, so it's Tuesday afternoon here and I started consuming it ~8pm local time Saturday.

Most important - no seizure. I used to have one daily and I actually had caffeinated tea outdoors this morning. I avoid all drinks with caffeine (including Coca Cola) unless in a safe environment as I am not sure if that's a trigger. After 3 hours, nothing except for a slight headache now which I am not sure whether I can attribute to either tea or the drug. I will update again on Saturday evening local time unless there's anything major.

Cheers,
Louis

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Replies to "@keeg1010 Hi Kerry, Yes! A bucket of 8 pieces for $10. OMG! I can only smile..."

@louissc
A queue? Needs a little explanation. Like, a massive line waiting to get food? I don't blame you. Some things are so worth waiting in line for. Just wait until In and Out burger is there....WOW! Their burgers are fantastic and their fries (although not McDonalds) are seasoned fries and you get a ton. They are pretty good!
I agree...I cannot imagine Elton or Agatha dealing with the difficulties of epilepsy. I think it takes an extreme amount of courage and fight. Never give up. No matter how bad things get...they can always get better. At least, Keegan has taught me that. He definitely changed my life and career. I changed careers and having been working with the special needs community for 24 years. He definitely touches everyone who meets him. He just has that smile and that innocence and is so open to everyone.
On another note, what is a 99 year leasehold? I've not heard of that before. You have a lot of friends in Australia? Have you ever visited?
I know there are so many triggers for seizures and some are so hard to figure out. I'm glad you are doing well with Briviact, so far. Did you increase your dose? I thought you started at 25mg? I could be mistaken. One thing you mentioned was caffeine. I have heard that could be a trigger. I'm glad there was nothing major with your caffeinated tea.
Please keep me posted. I enjoy our conversations and learning form you 🙂
Kerry