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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@mictim

Thank you for this group as I am finding out that there are many more who are worse off than myself and that really hurts my heart. My SFN Idiopathic is a foot full ; ) to deal with as it is. Learning to deal with a medical condition is not an easy task . some how learning to live with your NEUROPATHY and redirect the pain which again not an easy task. I will report that it seems at times that mine gets better, maybe the nerves SFN are repairing themselves which someone talked about this morning. I am very fortunate to not have Large Fiber LFN. Everyone just hang in there and somehow help someone else in the process, as that seems to help out a little by redirecting the pain in some positive way and direction. MicTim

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Replies to "Thank you for this group as I am finding out that there are many more who..."

Thank you all for the feedback. I am sitting here right now is bad pain. My foot and leg below the knee are so swollen they look and feel like they are going to pop. I did take a percocet about 2 hours ago which help decrease the pain. It is back now. My toes are so swollen I cannot move them. I had to cancel lymphedema therapy today because I was having electrical work done in the house. I don't see the neurologist until May 22 so I have no clue what type of neuropathy except for peripheral. The cardiologist said the reason all the pain and swelling is on my left side is because the damaged nerve is probably on that side. My quality of life is so diminished and with my depression and pain it is worse. I am alone here. I lost my husband 14 months ago from cancer. I feel the doctors waited too long to address my pain and physical problems always using grief to account for everything. Well I don't think it has caused neuropathy. In tears right now.