Connect
← Return to What are the most recent treatments for Large fiber neuropathy
Discussion
What are the most recent treatments for Large fiber neuropathy
Neuropathy | Last Active: May 13 5:07pm | Replies (33)Comment receiving replies
@bjk3 Hi, Barb
So you were able to learn from the results of your EMG and other tests that your PN is large-fiber. Or you say "long-fiber.: Is long-fiber and large-fiber the same thing? As I think my post mentioned, I have never been given an "official" large-fiber diagnosis. I concluded that mine is by a process of non-clinical elimination: all of my symptoms point to large-fiber.
You mention "painful hands," but that may be carpel tunnel, related to PN, perhaps, but also in certain ways disassociated.
Words worth repeating, eh? "Quite a puzzle!" 🙂
Onward and upward!
Ray
Replies to "@bjk3 Hi, Barb So you were able to learn from the results of your EMG and..."
Connect
@ray666 Hi, Ray,
You have me in the research mode here (which is a good place to be when there doesn't seem to be a lot of outside help). Putting the specific muscle fibers measured into quotes from my diagnosis: ""Right peronesis longus muscles" and "Left peronesis longus muscles", these indicate long-fiber (elongated shape rather than large) according to verywellhealth.com, one of several websites which offered an explanation of the distinction between long and large fibers. Here's the real kicker: according to this and other websites, these longus muscles are responsible for the "crucial role in foot movement and stability" and state that (in layman's terms) dysfunction of these long-fiber muscles lead to balance and gait problems. Hmm...movement, stability, balance, gait...ring any bells?
As to the Carpel Tunnel, that diagnosis was made by separate EMG testing, and the Occupational Therapy I received was incredible. I am confident that I will never even have to make the decision to have surgery if I just continue with the tools and instruction I was offered. In any case, I just couldn't, living alone and hoping/planning to stay that way.
Let the research continue. Peace, Ray~
Barb