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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Hi. My name is Carol. I am familiar with Mayo Clinic connect and known by summertime 4. However, Carol is my name and I have no problem sharing that.. I was recently diagnosed with idiopathic peripheral neuropathy. This diagnosis came about after a nerve conduction test with also the electrical shock. I have many of the classic symptoms which include awful pain in y left foot and toes. Of course numbness in both legs and an inability to walk without the risk of tripping. As for the idiopathic. I have not seen a doctor since this diagnosis so hopefully they will try to find a cause if there is one. I have been prescribed Gapapentin 600 mg for fibroyalgia so they may increase that. If anyone has any information they can share with me I would appreciate that. Thank you.
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@summertime4, Hi Carol, I am currently waiting for my EMG which is June 12th. I also have some type of neuropathy. I believe I had small fiber neuropathy for the past 15 years only I think it may have progressed to the large fiber, motor nerves. This is just my feeling after researching everything that I can. I know how frustrating it can be to hear that word “idiopathic”. My left foot is the worst as well with lots of pain and toe twitching, although I don’t have swelling but I have recently noticed some muscle atrophy in both feet. I can walk still, but not very much, just a little around the house mainly. I also have Fibromyalgia and I know that people with FM can get neuropathy. I take 600 mg. Gabapentin and 50 mg. of Amitriptyline. The combination helps me sleep which I am thankful for. You might ask for another medication to go along with the Gabapentin for pain relief. I hope that your doctors will look further into finding a cause for your neuropathy. I know how truly difficult it can be. Please take care. -Laura