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No response to forteo

Osteoporosis & Bone Health | Last Active: 1 day ago | Replies (24)

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@hipsalve I was diagnosed in my 40's with osteoporosis . I tried Bisophomates, but had a severe reaction and then got lost in the medical process of starting something else until I started to fracture. I was in a small boat and went over a few waves that resulted in a few compression fractures in my spine. I was actually flown to hospital and had to heal to walk again. It was a brutal time and a series of 13 spinal fractures. Forteo literally saved my life. Prior to spinal fractures I was -4.2. After fractures they can only measure my thigh and hip now. Currently they are at -3.2 Femoral neck and -2.8 hip. Which is why I am back on Teriparatide now. I have not fractured since 2016. I will go back on Raloxifene for maintainance and redo Forteo in 5 years if numbers indicate. Evenity can only be followed up with Prolia or Reclast, so that feels like a dead end for me, given my reaction to bisophomates and the dental episode I had from the one shot of Prolia. Plus my endocrinologist said my fracture risk was too high for Prolia's possible risk of spiral fracture in my case. Every one is different. It is good you are able to tolerate Reclast. : )

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Replies to "@hipsalve I was diagnosed in my 40's with osteoporosis . I tried Bisophomates, but had a..."

@broken13 So sorry to hear about your multiple spinal fractures—scary that it happened on a small boat. Glad you were able to get on Forteo.

Hope there are new treatments on the horizon! From articles I’ve read, sounds like two rounds Forteo is becoming more common. Do you know others who are doing/ have done two rounds of Forteo?