I dont have pain other than the very rare jolt. But it isnt just numbness I cant really describe how it feels but this is the best I can - like my ligaments are being pulled, my foot feels like its literally a dead stone and about to collapse. I have an afo but the ankle still feels like rubber. Its constant and I too cannot take it mentally and its always on my mind. You can probably tell by my scattered writing that Im struggling mentally I guess. I tend to repeat my symptoms to see if anyone has the same but realize it can make it look like Im just thinking of myself. Best part is Im not even 50 yet so feel very alone and unable to relate to anyone. Not sure how to be positive with this…we’re at the bottom of any neurologists list! Anyways sorry but I dont want to add more misery but just being honest as if I said anything else I would be lieing. Hope you have some success!