Connect
← Return to No response to forteo
Discussion
Comment receiving replies
@broken13 I took Forteo eight years ago as my spine was -3.6, then took Reclast one time. My numbers improved in all locations. My TBS scores were always good. No fractures. A few months ago was in a car accident and fractured T1. I checked a DEXA scan afterwards and it had gone down to -3.6 in my spine again despite doing regular exercise and eating well. I had to do something, and I feel very nervous about Evenity, which is what my doctor preferred I do. I know Evenity is fairly new and want to wait until more data comes out on it. After reading about how Evenity blocks sclerostin, which is cardio-protective, I decided to go on Forteo for a second round. My doctor was completely fine with that. So that’s where I am now. I’ll do Reclast again after Forteo. Then she wants me to do Prolia but I’m not sure I want to do that. I’ve seen a few people doing a second round of Forteo ( or Forteo then Tymlos which is very similar) on this site. How did you come to do a second Forteo round and do you know others who have/ are doing this?
Replies to "@broken13 I took Forteo eight years ago as my spine was -3.6, then took Reclast one..."
@hipsalve although not a direct response to your comment, I did want to mention that I also fractured T1 after a car accident and never had any corrective surgery or treatment. How did you mend from that? My lumbar spine is -3.3 on a rem’s test after five months of Tymlos,because DEXA cannot read my spine with all of the degenerative and sports injuries not to mention the auto accident. My hips were replaced bilaterally so that doesn’t help with DEXA either. I do not have a baseline and can’t really tell where I’m headed with Tymlos.
Connect
@hipsalve I was diagnosed in my 40's with osteoporosis . I tried Bisophomates, but had a severe reaction and then got lost in the medical process of starting something else until I started to fracture. I was in a small boat and went over a few waves that resulted in a few compression fractures in my spine. I was actually flown to hospital and had to heal to walk again. It was a brutal time and a series of 13 spinal fractures. Forteo literally saved my life. Prior to spinal fractures I was -4.2. After fractures they can only measure my thigh and hip now. Currently they are at -3.2 Femoral neck and -2.8 hip. Which is why I am back on Teriparatide now. I have not fractured since 2016. I will go back on Raloxifene for maintainance and redo Forteo in 5 years if numbers indicate. Evenity can only be followed up with Prolia or Reclast, so that feels like a dead end for me, given my reaction to bisophomates and the dental episode I had from the one shot of Prolia. Plus my endocrinologist said my fracture risk was too high for Prolia's possible risk of spiral fracture in my case. Every one is different. It is good you are able to tolerate Reclast. : )