@nannybb Yes he did stop scans after 10-12 years. But remember at that time there wasn't much information and no treatment for NETS. In retrospect, there were a couple of times he had some pains that probably were connected to the tumors growing but he was overall pretty healthy. Exercise is important but also difficult to do if you aren't feeling well. I understand how you feel about your family. Because it has been so long for Ron, our kids don't always take it as seriously as I wish they would. Their dad still does everything he has always done. Generally they don't see him when he has had issues with food. They are more concerned now after finding out that the tumors are increasing. I keep them informed as Ron really doesn't like to talk about it.
Please keep in touch. I've found Connect to be very helpful for me to educate myself on NETS as well as the emotional support!! Prayers will continue for you. Thanks for connecting!