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Profile picture for cathymal @cathymal

Just had first infusion on April 29th this year.
No side effects at all until yesterday and this morning.
Such bone pain,can hardly walk,wrist and finger pain,knees.
Waiting to hear back from my dr.,but doubt if there is anything he can do.
Any advise please?

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Replies to "Just had first infusion on April 29th this year. No side effects at all until yesterday..."

@cathymal actually I thought it was bone b
Pain too. Doctor said muscle pain. Some says it goes away in a few days. Mine has lasted 6 months. I walk and do yoga a lot. Sometimes much worse than others. IBU and Tylenol help but oh course, there is a limit as to how much you can have. Voltaren rub helps. Just having to deal with it😢

@cathymal

just had my first reclast infusion 5 days ago - within 24 hours pain was also absolutely unbearable from toes to ears - nothing touched or relieved it! I was moved from T;ylmos to Fortero with significant side effects and was encouraged to do Reclast. My bad that I did not research - As of today 5 days after infusion am still in significan pain and can barely move my neck - grateful that body bone pain is gone but terrified it may return - I will not get this done again. If they they call this reaction flu like symptoms it is NOT and it appears enough of us have similar experience.
Share this with as many as possible before they get an infusion! I am 81 and no sissy with pain - just saying we are not being fully informed.