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@ray666 Hi, Ray -
Glad you brought the topic back for discussion - like you said, you never know. And I, too, am sorry there hasn't been more of a response as to new findings or even enthusiasm for research. It did cause me, though, to reread the printout of the diagnoses of my EMG and Nerve Conduction Velocity studies, and they definitely state that mine is Long Fiber. However, if I am not taking Pregabalin at regular intervals, the pain in my feet is excruciating. It has been so for many years but has not traveled to other parts as it seems to for some others. Hands, though also considered peripheral, were not diagnosed as PN but rather by Carpel Tunnel, and only seem to be painful when affected by the weather. Their other symptoms (tingling, weakness) respond to non-medicinal treatments.
Like you said in a later post, "Quite the puzzle". Amen!
Cheers, Ray, to a new week!
Barb

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Replies to "@ray666 Hi, Ray - Glad you brought the topic back for discussion - like you said,..."

@bjk3 Hi, Barb

So you were able to learn from the results of your EMG and other tests that your PN is large-fiber. Or you say "long-fiber.: Is long-fiber and large-fiber the same thing? As I think my post mentioned, I have never been given an "official" large-fiber diagnosis. I concluded that mine is by a process of non-clinical elimination: all of my symptoms point to large-fiber.

You mention "painful hands," but that may be carpel tunnel, related to PN, perhaps, but also in certain ways disassociated.

Words worth repeating, eh? "Quite a puzzle!" 🙂

Onward and upward!
Ray

@bjk3
My body will not tolerate Pregabalin well. Do you have side effects? I have been taking for 5 months and the fog, weight gain and water retention has not improved. Cymbalta worked well but I have tremors that are mild on Cymbalta they are intolerable.