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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@grandmar

@dancermurphy, @jenniferhunter
HI!
I am also a spine surgery patient.
My chronic pain actually began with cerival pain. Remarkably, after one shot, the pain was gone for years and years. It started up again about 2 years ago. My pain doctor tried many different things, but they did not help. I had pins and needles down my arm and violent headaches would wake me up.
In addition to the cervical issues, I also had lumbar issues with unrelenting pain. I saw 5 different pain docs. The last one I went to was able to help me. He procedures would give me anywhere from 1 month to 4 months of pain reduction. It was something I could live with. About 2 years ago, at the same time I had issues with the cervical spine, my pain doc was not longer able to help my lumbar.
After over a decade of suffering, I had enough. There were months, even a couple of years when I couldn't walk because of the pain. It was then I decide to confer with a neurosurgeon.
After looking at my test results, he suggested doing the cervical spine first. Instead of having a fusion, he replaced C5/6 with artificial disks. He went through the front of my neck. For me, after a couple of days, the surgical pain was gone. Within 2 weeks, my headaches were totally gone as was the pins and needles.
I healed very quickly and easily so I started PT at 6 weeks post-op (instead of 8 weeks).
Then came the lumbar. What a difference!!!!!!
I had what was called and X-Life fusion of L4/5. The recover was HORRIBLE and VERY PAINFUL for me!!!!! I was on pain meds longer than I had every been. Then suddenly, at 4 months, the pain was suddenly gone!!!
I still watch myself VERY carefully as if I just had the surgery. Too many people start to carry on the way they did before surgery and then the pain returns. They say the surgery was not successful, but I PERSONALLY THINK it is because they didn't take care long enough. Even though the scars and pain might be gone, it could take over a year for the cervical spine to completely heal and up to 2 years for the lumbar.
That being said, I don't lift anything heavier than a gallon, I don't bend without bending my knees, and don't reach and hyperextend, I still use the gripper I got after surgery, I don't turn my head or body quickly, etc., etc., etc.
So that's my story!

Ronnie (GRANDMAr)

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Replies to "@dancermurphy, @jenniferhunter HI! I am also a spine surgery patient. My chronic pain actually began with..."

@grandmar From what I have heard, recovery after cervical disc replacement is easier than fusion. My presurgical pains were gone immediately too after my fusion surgery and most of the surgery pain was gone by 6 weeks. 3 months later, I stopped noticing that I had had surgery. I heard about the lumbar surgeries being more difficult and painful, and it makes sense since that is bearing all your body weight and forces if you twist can pull on the hardware. I have a bulging lumbar disc and I am trying to maintain my core strength to protect my lumbar spine and hopefully avoid a lumbar problem. I do know that riding my horse does wonders for that, and I make sure I ride with good posture. I can get some low back pain, and riding helps it. It also helps by strengthening my mid back which helps posture and that is important for me because I also have TOS (thoracic outlet syndrome) and any slouching or forward head posture will just aggravate that. Swimming also helps and I like to kick laps with a kick board and I should be doing more. I appreciate hearing your story. I'm careful too and don't want to do activities that stress my neck. I do have some issues with long distance driving and get spasms from my shoulder into my neck because of the TOS after it starts to fatigue. I don't have as much arm strength either, so I am careful about lifting. I am past 2 years post op now, and still rebuilding muscle that was lost. It is a long recovery.