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← Return to Weaning off keppra protocol?
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@keeg1010
Hi Kerry,
I really need to exercise some restraint when it comes to KFC lol. But life is short, right? I really hope to be able to take a 15 hour plane ride 1 day. If you think Arizona summer is hot, you should come experience our daily over 90 degree temperature and almost 90% humidity.
My mum was the first to be constantly by my side before any caregiver. Initially I was a little embarrassed being fully naked when showering in front of her. Then I told myself she saw me naked for much of my life and I came out of her body. So, yeah. In the end, all parties can only keep a look out for that 99%. In the event that 1% happens and takes my life, I tell them that’s just life so don’t feel guilty. Just curious, what does a group 4 home do? Keegan is lucky to have loving parents!
It’s 2 nights now with Briviact. Besides a little daytime fatigue and balance issue, it seems ok. Keeping my fingers crossed.
Cheers,
Louis
Replies to "@keeg1010 Hi Kerry, I really need to exercise some restraint when it comes to KFC lol...."
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@louissc
No restraint needed for KFC. In Arizona, they have a special on Tuesdays for 8 pieces of chicken for $10. We take advantage of that often!
Well, it definitely sounds like it's just as hot, if not hotter. I used to live on the east coast where the temperature was similar to yours. I DEFINITELY do not miss the humidity but I do miss the ocean.
I'm glad to hear that your mom was constantly by your side. Believe me, as a mom, all we want is to be there and do everything we can. We don't care if what your age is-just that you are well cared for. I really hope the Briviact works well for you. I know it'll take time before you'll know so I'm keeping my fingers crossed as well.
As far as a group home, in Arizona, it is a house that provides twenty-four-hour care. There are providers in the home day and night and Keegan is assigned to certain providers, all of who he loves. Keegan lived at home and I was his primary caregiver for 24 years. My husband and I decided at age 24, we should find a good placement for Keegan because we will not live forever. So, Keegan is in a 3 bedroom house, on a golf course, with 2 roommates he loves. The group home works on daily living skills and having Keegan be as independent as possible. They constantly do activities, like movies, bowling, dining out, parks, etc. He LOVES it! I see him several times a month and I am close with all of his providers. It was the best decision we ever made for his independence.
I hope you enjoy some KFC! 🙂
Talk soon,
Kerry