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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@artscaping

@vilee, Good morning. I have not been accepted for treatment at Mayo. The team felt that I am already being treated appropriately and there is nothing more that can be done right now. @johnbishop has written about his experience and the results of his evaluation at Mayo. That might be helpful for you to know. John, can you explain. Be safe and have happiness today. Chris

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Replies to "@vilee, Good morning. I have not been accepted for treatment at Mayo. The team felt that..."
John, Volunteer Mentor | @johnbishop | Mar 25, 2019

Hi Victoria @vilee, welcome to Connect. Thanks for tagging me @artscaping. Victoria I had neuropathy for 20+ years before deciding to see if there was anything that would help. You can read my story in a post earlier on Connect here:
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
I only have numbness with my idiopathic small fiber peripheral neuropathy so none of the pain drugs do anything for numbness for me. I take supplements that seem to have slowed down or stopped the progression of my PN but it's a little subjective on my part. I found the supplements in a closed Facebook group and most of the over 6000 members of the group have found relief from the pain and been able to taper off of all pain drugs by taking the supplements. The link to the group and their website is in my story/experience link above.

I was referred to the Mayo neurologist by my Mayo primary care doctor. Have you already been diagnosed with idiopathic PN?

John

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