Hi All!

I actually posted in my Chronic Pain group, but I think I should post here, too.
I went to the neurologist and neurosurgeon this week.
The neurologist said that I indeed have neuropathy, but she did not give it a specific name of what kind.
The test results say that it is coming from my messed up spine (L4, S1).
My left side, according to the tests is worse than the right.
Since nothing is 'normal' with me, I have more issues with my right side than left, that is typically me.
My right big toe is gone as far as movement.
The other toes have a bit of movement up and down, but not much.
On my left foot, the big toe is starting to become worse and the other toes still have movement.
Both ankles are BAD!
I cannot swiivel them from side to side. As a result, both doctors said I CAN NOT LONGER DRIVE!!!
She said my nerves are clumping near the lumbar surgical site.
She also said that most of my lumbar vertebra are moved, at least slightly to one side or another.
I asked why I am not feeling pain, NOT THAT I WANT TO.
It has something to do with where the synapsis are and where the stenosis is.
Pain COULD be on the way, but we HOPE NOT!!
(I'll get back to that in a minute)
Now, my neurosurgeon is CONVINCED that there is more going on!
He is sending me for an MRI of my T-spine. He found a cyst in my spinal canal a time back and is checking to see if it has grown.
He said he can do a minor surgery to 'clean up' some of the issues, but all it will do is give me the ability to walk longer.
He also COULD NOT GUARANTEE (of course) that the surgery will result in pain (aside from the surgical pain).
At this point, I am NOT willing to take a chance since this is the first time in over a decade that I am PAIN FREE (except for minor OA pain, which I can deal with).
So, both docs are going to confer to see if they can decide what to do, if anything at this point.
The neuropathy is NOT from the surgery since it started months before.
I truely believe that I waiting so long to do anything more than injections and other interventions, that I developed this.
The nerve damage I have will NOT reverse, but it is progressive. It is my goal to find a way to prolong the progression.
This is all new to me. So far, I found that theraputic massage has helped. After my session, I could wiggle my toes a little bit, which is more than I was able to do.
Sorry for being so long, but those of you who know me, know I am wordy.

One question......Has anyone retrofitted your car with hand controls? If so, can you give me a ball park of how much it costs? Who actually does the modifications?

Thanks all!
Ronnie (GRANDMAr)