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Relief from Radiation Fibrosis Syndrome
Head & Neck Cancer | Last Active: 10 hours ago | Replies (62)Comment receiving replies
@mwpcaretaker Semper Fi to your husband. It's been quite the journey, and the baroreflex issue has definitely been a complication. Just when I think I have it under control, I am greeted with a ridiculous BP reading. When I first learned of it, one cardiologist told me I wasn't his bread and butter, and another told me I'd have to learn to live with it. I'll be seeing another cardiologist soon as I've developed more complications. Research suggests having an autonomic specialist on my team. I'm still looking into that. One great source for the latest research is Google Scholar. Good luck!
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@56tburd I tried to get him into Vanderbilt Autonomic Dysfunction Center because they list Baroreflex Failure as one of the disorders they see people for, but after almost a year of being unable to get him in, we moved on to seeking other treatment.
Besides wild blood pressure fluctuations, he began having overreacting fight/ flight symptoms. Sometimes just a minor startle reaction caused so much cortisol and adrenalin release that his BP would shoot up, face turn really red and sometimes not able to form words correctly. The first time I saw that, I was really afraid he was having a stroke because he didn't realize his words weren't correct. I understand what that was now and we try to avoid anything that could cause a reaction like that again.
I'm not a doctor but I'm POSITIVE the constant strain on his heart of the fluctuating BP and stress reactions is what caused the heart failure of unknown origin that his doctors called it.
It seems like it's always something new to add to the list. I'm sure it seems that way to you also...