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Mayo Clinic diagnosis of Gammaglobulin deficiency: Any tips?
Autoimmune Diseases | Last Active: Jun 27 7:14pm | Replies (70)Comment receiving replies
@itsmeagain
It’s expensive but the specialty pharmacy can secure a grant for you from the PAN Foundation ( which they probably know) to cover those costs. That’s how mine is paid for. I don’t recall the exact costs (mine is for CIDP) but treatments are several thousand dollars. The PAN Foundation is set up specifically for situations like yours-to cover lifesaving costs for situations just like yours. You can also apply for a grant yourself but the pharmacy should do it. It’s a common practice.
Good luck and Gd bless.
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@itsmeagain Thanks for the great information! I will definitely apply to the PAN foundation, as time goes on. CVID is my diagnosis for sure, from the Mayo Clinic testing, but CIDP is being evaluated, according to my immunologist, because I have ascending ( slowly ), polyneuropathy also, diagnosed. I may have to do further EMG, up to date, testing, and, possibly lumbar puncture, to check for protein etc. Previously, a few years back, I’ve had both of those procedures! I hate the thought of the lumbar puncture though, because the last time I had that, I got one of the worst headaches of my life! Right now, my IgG blood work is way too low, and I’m getting IV enfusions covering that ( Costing $4000.00 ),that, so far, is being covered by Medicare, and my secondary insurance! So, we’ll see how everything goes, in the next few months, for me! Meanwhile, I’m adjusting and recovering from a “Watchman” heart implant, so that I don’t get any more blood clots, from having been diagnosed with atrial fibrillation! I’ve already had 2 lacunar strokes! Again, thanks for sending me this valuable information! You are appreciated!!