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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
@david33 Join the club of feeling like you are being given the runaround. So many doctors want to test you, diagnose, and then tell you they can do nothing for you. It is a very strange path to learn that you are fending for yourself. Try to read all you can from this site and Peripheral Neuropathy group in Chicago area that casts a wide net. I found I could not live with any of the anti-seizure medications and have found alternatives that have made my life reasonably symptom free over last 10 years. But never give up, your condition and your potential solutions may be different than anyone you will talk to regarding PN. Good luck, I wish you success asap.
MS probably refers to multiple sclerosis. Strange they would suggest it as possible, then not go forward with test for it.
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I am new to this site and get multiple multiple emails daily which I read diligently. I am trying to follow the conversations. It is a little bit confusing but I am looking for answers for my ideopathic neuropathy. I noticed you said you have found relief. Please share what you found. I too Do not want to take the anti seizure drugs or the the anti depressants. I have only been dealing with this for 8 months but it feels like a lifetime. I have tingly and pain n both feet. They are calling it small fiber neuropathy. But of course no cause. Does this drive anyone else crazy? All these neurologists and they can’t find the cause ! Has anyone with ideopathic neuropathy ever have it go away? Or am I doomed forever? I would love to see more posts on what treatments or medications that WORK!!
Thanks