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Anyone living long-term with DIPNECH on lungs?

Neuroendocrine Tumors (NETs) | Last Active: 5 days ago | Replies (77)
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@nannybb
Supposedly, octreotide can help with that. Maybe over time or a different dose? My flushing tends to happen more at night and the whole right cheek. I was told octreotide can also cause it. Was it happening before octreotide?

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Replies to "@nannybb Supposedly, octreotide can help with that. Maybe over time or a different dose? My flushing..."
nannybb | @nannybb | May 10 1:22am

@californiazebra Zebra, the surgeon wants me to try the I.M. dose when I'm finished with 3 times a day. I'm really not worried, worried about it. I hate the flushing before surgery, and after. It contunued with the shots. I'm actually more upset that no one is concerned about my not having CAT scans. I just need an oncologist to be in charge of putting my treatments all together. Hope YOU are feeling better. 💕

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