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After "recovering" from PMR, still decreased strength/stamina
Polymyalgia Rheumatica (PMR) | Last Active: 19 hours ago | Replies (43)Comment receiving replies
I’m about 3 years into my treatment. Prednisone did nothing for me but cause terrible side effects. I visited Cleveland Clinic and they moved me to methylprednisolone, and I was better that day. Then I moved to a weekly Actemra injection, which I hope to stop soon. My PMR was really severe and I even lost a great deal of weight early on. I still struggle with weak leg muscles and tight hips. Picking something up from the ground is difficult. I’m working on leg strength and flexibility but it’s an up hill struggle.
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@robertmacwheeler
Like you, I lost lots of weight initially. It’s been a real balancing act keeping the PMR under control and still trying to not lose stength at the same time. Working or exercising too much and risk the PMR flaring up. For myself I could tolerate smaller and shorter physical work without consequences. Pushing too hard would come at the cost of days of recovery or the start of a flare. My PMR recovery would likely have been much smoother if I hadn’t been still working full time but that’s life. It’s a real tough thing to keep PMR controlled but not losing on the physical end.