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DiscussionAnyone living long-term with DIPNECH on lungs?
Neuroendocrine Tumors (NETs) | Last Active: 5 days ago | Replies (77)Comment receiving replies
Replies to "@nannybb If the ablation is successful then no repeat is necessary. My 2.6 cm tumor was..."
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@californiazebra They are suggesting ablation for burning the nerve bundle causing my pain. What you had done maybe is different?? Like I said, my video call was with a N.P. who works under my pain specialist. She seemingly could not answer many of my questions. I was left with a big question mark on my face. I had a friend listening in. They got the same impression. We looked at each other when she signed off and asked, "What just happened?" I've got to get an oncologist on board. Not having any CAT scans since surgery in July also has me worried. Frustration is setting in. I spoke to a social worker on Thursday who asked how he could help. I told him about the referral to an oncologist from my G.P. and not hearing back. Heck, the scheduling dept. didn't even see the referral when I called to ask. The N.P. said SHE saw it on my chart. THAT made no sense either. I used to work in medical. It was pretty cut and dry back then. I'll have to delve back in on Monday.