Connect
← Return to Relief from Radiation Fibrosis Syndrome
Discussion
Relief from Radiation Fibrosis Syndrome
Head & Neck Cancer | Last Active: 10 hours ago | Replies (62)Comment receiving replies
@56tburd I just created an account to connect with other people having long term complications from the radiation therapy that saved my husband's life. His baroreceptor function was so messed up for too long and his doctors were not comfortable with the newer Barostim device. So he suffered and his heart was so affected by the BP fluctuations and overreaction caused by the ANS dysfunction over the years that he just had to have a pacemaker/defibrillator device implanted a week ago.
His cancer treatment was in 2012 so it's been 14 years of one health condition after another. Still though, he's powering through because he's "Always a Marine" and I'm grateful he's still here with me.
Replies to "@56tburd I just created an account to connect with other people having long term complications from..."
@mwpcaretaker Semper Fi to your husband from me as well (USMC 1989-93). I’m 3 years out from surgery, chemo and radiation on my left side of my neck. No major complications so far other than mild fibrosis and lymphedema but I’m apprehensive about the years to come reading about others long term struggles. Thank you for sharing his story. It seems to me the same folks that help save our lives don’t have much to say about long term radiation effects. I want to be proactive and do everything I can to minimize them.
Connect
@mwpcaretaker Semper Fi to your husband. It's been quite the journey, and the baroreflex issue has definitely been a complication. Just when I think I have it under control, I am greeted with a ridiculous BP reading. When I first learned of it, one cardiologist told me I wasn't his bread and butter, and another told me I'd have to learn to live with it. I'll be seeing another cardiologist soon as I've developed more complications. Research suggests having an autonomic specialist on my team. I'm still looking into that. One great source for the latest research is Google Scholar. Good luck!