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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@johnbishop

Good morning Ronnie! @grandmar, Glad you found this discussion. Age 75 - my experience and 2 cents with my idiopathic small fiber neuropathy...
1. Driving - I can still drive, do not like driving more than an hour or so, or at night.
2. Can neuropathy be reversed? - maybe, depends on type, cause, etc..
3. Can neuropathy progression be stopped? - maybe, I think mine has been slowed or stopped but it's subjective on my part - my story shared here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
4. What limitations have YOU had? I try not to let the old man in - I can't run anymore ☺ and can only do moderate exercise.
5. I walk with a cane but I still fall and/or trip. How about YOU? Me too sometimes but I'm hoping to ditch the cane after a knee replacement next month.
6. Have you gone for aquatic or land PT? Has it helped? Nope, but I think it has helped a lot of people.
Foundation for Peripheral Neuropathy - Exercise and PT
-- https://www.foundationforpn.org/living-well/lifestyle/exercise-and-physical-therapy/
Effectiveness of aquatic versus land physiotherapy in the treatment of peripheral neuropathies: a randomized controlled trial
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5952298/
7. Do you experience pain? Nope, numbness only
8. How quickly did YOUR neuropathy progress or have you been able to slow it down or stop its progress? - link for question 3
9. Has surgery been suggested? Nope

As much as I would love it, there is no cure for neuropathy - still waiting for the magic bullet. Diabetic neuropathy is really the only type that I have read that can be reversed but I have no medical training or background so it's just what I have read.

Hoping my neuropathy friends have a pain free day or at least are able to deal with it to make it feel like it's better.

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Replies to "Good morning Ronnie! @grandmar, Glad you found this discussion. Age 75 - my experience and 2..."

@johnbishop
Hi John,
Glad I found this group, too. A new problem, a new group!
Thank you for sharing your information with me. You always have such a great attitude and you push forward.
All this is new to me and I hope to be able to do the same thing. I guess once I meet with my docs, process what is said, I'll be able to deal a bit better.
I don't want to be a 'Negative Nelly', but I also don't want my head in the clouds only to be rained on when I get more definitive prognosis.
Have a great day!
Ronnie