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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@denisectx

I have been dealing with neuropathy since I had a severe sprain which caused both CRPS and a traumatic neuroma to form back in 1998 in an area slightly closer to the toes than a Morton's Neuroma - its been suggested its a Morton's Neuroma and then after surgery redefined (again and again) as not one ugh. I have been through so many procedures and medicines - nerve blocks, surgeries, every suggested pill... My last major procedure was a surgery where the neuroma was removed - the pain stayed away about 9 months...now its back as bad as its ever been. I am on Lyrica, Cymbalta,Lidocaine/Prilocaine and Capsaicin cream.. each thing offers a bit of relief but no where near good relief. I stay active as I can. I practice walking properly or my foot turns in. It hurts insanely bad but I don't want my foot to weaken. The pain has spread up my shin ...weird thing is I have bruising that never goes away along my nerve line my doc says that can happen as the neuropathy spreads. I am 55 with 4 grown children and 2 grandkids. Married 37 years to a very supportive man who has his own health issues. And we own our business and work from home. I am feeling pretty down ...just tired of this. Not suicidal ... but so tired of it. How do you all get through the day?

Oh it is a cutaneous neuropathy in my left foot..and now shin.

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Replies to "I have been dealing with neuropathy since I had a severe sprain which caused both CRPS..."

Hello @denisectx, welcome to Mayo Clinic Connect. Thank you for sharing your symptoms and treatments. I don't have pain with my small fiber peripheral neuropathy but do have numbness in my feet and just above the ankles. I also get tired of dealing with it. Even more so now that I have to wear compression socks for another health condition - lymphedema in my legs. What helps me get through the day is keeping my mind focused on other activities and just taking it one day at a time and one step at a time. I shared what helps me in a post earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

I can understand your feeling down about your neuropathy and dealing with the pain. You are not alone. Many others here also have had the same feelings and may still have them. You are your best advocate so I'm hoping you keep searching for answers and learning as much as you can about your condition. Have you tried any alternative or other treatments?

@jenniferhunter, @artscaping and other members may be able to offer some suggestions for you.