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← Return to bone pain four months after Reclast Infusion
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bone pain four months after Reclast Infusion
Osteoporosis & Bone Health | Last Active: May 12 12:12pm | Replies (93)Comment receiving replies
@catkm and yet the drug literature for Reclast states that pain, sometimes severe, can occur months after infusion. I have experienced pain (not debilitating; but sometimes severe, comes and goes) in multiple body parts; fingers, forearm, legs, back, feet, ankles, etc. Also had bone pain on Fosamax (also a bisphosphonate); doctor had me take a two-week break (twice in the almost 1 year I was on Fosamax) because of pain. But he said reclast can't be causing pain months later. I say BS! I am due for another infusion around July, but DEXA is every two years so no testing (other than CTX, NTX, and other bloodwork for infusion) so I will not know completely how or if my bone density has improved.
Replies to "@catkm and yet the drug literature for Reclast states that pain, sometimes severe, can occur months..."
@jozer, I wish the mechanism of this long term pain from Reclast were known. Does it seem to be in the joints. Some describe it as deep in the bone. I'm so sorry your are having this.
@jozer look for a REMS Echolight center in your area for an Ultrasound bone density. No radiation, self pay usually around $175, and you can have it as often as you want as it is ultrasound and no radiation. A great tool to see how you are doing in between DEXA scans. The technology is available at OsteoStrong Centers and more doctor offices are offering this. Just Google Echolight REMS technology available in your area. They are popping up in a lot of places as the popularity swells for this effective bone density test.
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@jozer that reclast can’t cause pain months after is misinformation I had a reclast infusion 7 months ago and I still can’t walk without pain! It’s poison.