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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Yes, I was diagnosed about five/six years ago in my feet and hands. I had problems for years before that as I was a meter reader for a major utility company in Michigan (walking up to ten miles a day often for 25.5 years). There is a history of diabetes in my family and I was pre diabetic. I wasnt placed on drugs yet, but through a low carb diet my A1C is down to 5.5. Before diagnosed my feet were really painful. then about ten years ago I noticed some tingling, etc. Long story short, they put me on Gab about 5 years ago, 300 mg. didnt do anything so they increased to 600....same results. Dr just called and says he has to see me, so appt Fri. Gab is now considered a controlled drug I guess. I want to get off it and this last week have went down to 300 a day until I speak with the Dr. At this time, my feet are uncomfortable but not too much pain, at times slight shooting pain but numbness is up to my knees in varying degrees. Hand; the thumb pulls into my palm and I have to pull it back in place. I live in a very small town and the Drs leave something to be desired...
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@lindachakra before I met with a neurologist and was diagnosed with idiopathic small fiber peripheral neuropathy my primary care doc prescribed gabapentin for me also. I took it for about a week or so and told her it wasn't working. After a conference with her doctor team and explaining that I only have numbness with my feet and legs the lead doctor said the gabapentin is only for pain and they set up a referral to meet with the neurologist. That all started my journey trying to find something that helps. Besides the supplements I take which I think have slowed or stopped the progression (subjective on my part), I'm looking into myofascial release therapy. There are members who have had success with it and it does sound hopeful to me. I just have to set some time aside and find a therapist that is close enough. Unfortunately I'm going to have to wait until after I have my upcoming knee replacement done and am able to drive again. There is a great discussion here on Connect if you want more info.
Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
You mentioned your thumb pulls into the palm of your hand. Have you seen an orthopedic doctor? I found an article that sounds similar to what you are experiencing.
Tendon trouble in the hands: de Quervain's tenosynovitis and trigger finger
-- https://www.health.harvard.edu/newsletter_article/tendon-trouble-in-the-hands-de-quervains-tenosynovitis-and-trigger-finger