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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@johnbishop

Hi Linda @lindachakra, welcome to Mayo Clinic Connect. I thought I would answer your private message here in the Living with Neuropathy - Welcome to the group discussion so that you can meet other members who share your symptoms.

You can read my story and how I've been helped in the following post on Connect:
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
Update to my story above: The closed Facebook group I found that has helped me now has a website with links to order over the counter vitamins and supplements as well as a link to join their Facebook group. I would recommend joining the Facebook group, reading their new member page and then start searching in the group for information. You can also find all the files they keep with some pretty in depth information in the Files section under their Facebook group...it's easier to do this on a computer. Phones and tablets are a little hardier to use for some of the information. The links to the groups website and a link to join their closed Facebook group is in my post above.

Are you able to share a little more about your diagnosis and symptoms?

John

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Replies to "Hi Linda @lindachakra, welcome to Mayo Clinic Connect. I thought I would answer your private message..."

Yes, I was diagnosed about five/six years ago in my feet and hands. I had problems for years before that as I was a meter reader for a major utility company in Michigan (walking up to ten miles a day often for 25.5 years). There is a history of diabetes in my family and I was pre diabetic. I wasnt placed on drugs yet, but through a low carb diet my A1C is down to 5.5. Before diagnosed my feet were really painful. then about ten years ago I noticed some tingling, etc. Long story short, they put me on Gab about 5 years ago, 300 mg. didnt do anything so they increased to 600....same results. Dr just called and says he has to see me, so appt Fri. Gab is now considered a controlled drug I guess. I want to get off it and this last week have went down to 300 a day until I speak with the Dr. At this time, my feet are uncomfortable but not too much pain, at times slight shooting pain but numbness is up to my knees in varying degrees. Hand; the thumb pulls into my palm and I have to pull it back in place. I live in a very small town and the Drs leave something to be desired...