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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@geegie

Another really terrific piece of info!!!!! I've been diagnosed positively with small fiber polyneuropathy and ANA. I've been taking hydroxychoroquine and azathioprine to 5 month and the numbness has continued up my body and the existing numbness has gotten worse.
Insurance won't cover IVIG and I can't afford it. The rheumatologist and the neurologist don't know what else to do. DO YOU OR ANYBODY HAVE ANY SUGGESTIONS? I HAVE ABSOLUTELY NO PAIN. I HAVE ONLY NUMBNESS. Thanks bunches to you John and everybody else!
Rose

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Replies to "Another really terrific piece of info!!!!! I've been diagnosed positively with small fiber polyneuropathy and ANA...."
John, Volunteer Mentor | @johnbishop | Feb 12, 2019

Hi @geegie, Both @artscaping and @jenniferhunter have talked about Myofascial Release Therapy for pain and I think it may also help with numbness but I'm not sure. Jennifer has a really good post explaining it here: https://connect.mayoclinic.org/discussion/just-diagnosed-2/?pg=2#comment-268697.

I'm in the process of looking at it myself but it's not to the top of my priority list yet.

John

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