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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@anniemae

I wondered if there were any tests at Mayo Clinic that might diagnose the real cause... Or, is this the way that the progression will get worse?? Guess I might as well get used to the idea that this is the way it will be!!! I enjoy hearing from someone has some of the problems. Anniemae

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Replies to "I wondered if there were any tests at Mayo Clinic that might diagnose the real cause......"

Hi @anniemae, you mentioned earlier that you were diagnosed with idiopathic progressive neuropathy. Idiopathic means that they could not determine the cause of your neuropathy when they did the testing. Mine is also idiopathic (small fiber peripheral neuropathy). The neurologist told me it was most likely hereditary and I think he's correct. I've been corresponding with a cousin who has it and I'm pretty sure my sister who passed away a few years ago also had it. This short video by Matthew B Jensen Assistant Professor of Neurology, University of Wisconsin that gives a good explanation of how the different neuropathies are diagnosed.