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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@anniemae

Each day is different, sometimes my mouth will be numb and now the tingling is worse in my lower legs and feet. I have been on gabapentin and it doesn't seem to help much

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elained | @elained | Feb 11, 2019

Hi anniemae, You're the first person I've 'met' who talks about SFPN affecting their mouth!

My entire face is a nightmare. Even my eyelids burn, sting, and itch. The area around my mouth is very difficult. Even with 4200 mg of Gabapentin, daily, I'm still left with tingling lips and the tip of my tongue feels like I've burned it on something hot.

Gabapentin works fairly well for me. Without Gabapentin my fingertips feel as it needles are stabbing into them, all of my skin feels like a terrible sun burn, and the pain and burning, tingling in my face causes me to just sit very still with my eyes closed.

So I'm lucky that all I'm 'left with' is slight skin burning, and the burning of my lips and numbness of my tongue. The entire area around my mouth is also slightly numb. I cannot feel any food that might be on my face when I'm eating. That's embarrassing.

Since over the years my neuropathies have continued to increase, affecting different organs/systems of my body, I have to seek 'acceptance' of my conditions, in order to achieve some level of sanity.

Every day is indeed different.

Regards, ElaineD

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