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That's wonderful news that you've reached six months @janetlen

I hope your check-up today goes well. It must be nerve-wracking. I guess you've had to have another bone marrow biopsy?

Was the injection they gave you nplate? My mum was prescribed that this afternoon as a replacement for the eltrombopag, though we're now worried as the information we've read online suggests that it should only be used for ITP, and specifically not for MDS. From the website for the drug: "Worsening of a precancerous blood condition to a blood cancer (leukemia): Nplate® is not for use in people with a precancerous condition called myelodysplastic syndromes (MDS), or for any condition other than immune thrombocytopenia (ITP). If you have MDS and receive Nplate®, your MDS condition may worsen and become an acute leukemia. If MDS worsens to become acute leukemia you may die sooner from the acute leukemia."

My mum had her first injection today - self-administered with the help of one of the nurses. We're going to ask on Monday about it, but we're worried that her doctors have prescribed it as a treatment for ITP - a condition that my mum may or may not have - without considering its impact on her MDS.

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Replies to "That's wonderful news that you've reached six months @janetlen I hope your check-up today goes well...."

@mgol No, it was not Nplate. I would be as concerned as you are about the drug. Good thing you are asking about it on Monday. I would have a problem with continuing a drug without medical advise. Keep me posted. No, I don't have another BMB until my 1 yr anniversary.