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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)

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@vilee

Hello John, I don’t know if this is beyond your scope of mentoring, but I am trying to find a starting point for coming to the Mayo Clinic for testing and a complete medical workup for the diagnosis and treatment of my Burning feet. I’ve had it for years, but only at night and it was very manageable with cool fans and some icing. It did begin to worsen over the last 2-3 years and I talked to my family practice doctor with concerns. He never did any testing and just said I had PN, there was nothing I could do about it except take Gabapentin. It gave me terrible side effects. Since the first part of January it has drastically accelerated! It is constant burning in the bottom of my feet, becoming much worse with activity! I have never seen a neurologist. I live in Colorado, but after researching the best neuropathy hospitals, the Mayo is where I want to come! I just don’t know how to begin. I have Medicare and Tricare for Life as my insurance, but I don’t know if I need a referral from a doctor in Colorado before I can come to Mayo or if the doctors at Mayo will even see me. I’ve tried calling a couple of numbers, but still don’t know how to proceed. Can you help with some contact information and/or advice on how to begin? Thank you so much. Victoria

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Replies to "Hello John, I don’t know if this is beyond your scope of mentoring, but I am..."

Hi Victoria @vilee, welcome to Mayo Clinic Connect. If you would like to seek help from Mayo Clinic, please call one of our appointment offices.

The contact information for Minnesota, Arizona and Florida can be found here
-- https://www.mayoclinic.org/appointments.

Are you able to get your doctor to give you a referral? There is a discussion that you may want to read through that might be helpful.

Groups > Visiting Mayo Clinic > Your Tips on How to Get Off to the Best Start with a New Specialist
-- https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/

Here is a post in the above discussion that has some good suggestions.
-- https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/?pg=1#comment-240765

John