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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)

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@johnbishop

Hello @7510cahill and @elained, I would like to welcome you both to Mayo Clinic Connect and thank you for posting. @7510cahill you ask a question that I'm sure a lot of us members may have. I have no medical training or background but believe the answer can be different depending on a lot of factors in our health conditions and body. For me, there is no best medication because I only have numbness with my peripheral neuropathy and no drugs help with numbness according to the Mayo neurologist who diagnosed my idiopathic small fiber PN. I'm tagging our moderator @JustinMcClanahan to see if we should move your post to the following discussion where will have much more visibility and you will meet other member discussing treatments.

Groups > Neuropathy > Living with Neuropathy - Welcome to the group
-- https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

Are you able to share a little more about your diagnosis?

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Replies to "Hello @7510cahill and @elained, I would like to welcome you both to Mayo Clinic Connect and..."

Hello John, I don’t know if this is beyond your scope of mentoring, but I am trying to find a starting point for coming to the Mayo Clinic for testing and a complete medical workup for the diagnosis and treatment of my Burning feet. I’ve had it for years, but only at night and it was very manageable with cool fans and some icing. It did begin to worsen over the last 2-3 years and I talked to my family practice doctor with concerns. He never did any testing and just said I had PN, there was nothing I could do about it except take Gabapentin. It gave me terrible side effects. Since the first part of January it has drastically accelerated! It is constant burning in the bottom of my feet, becoming much worse with activity! I have never seen a neurologist. I live in Colorado, but after researching the best neuropathy hospitals, the Mayo is where I want to come! I just don’t know how to begin. I have Medicare and Tricare for Life as my insurance, but I don’t know if I need a referral from a doctor in Colorado before I can come to Mayo or if the doctors at Mayo will even see me. I’ve tried calling a couple of numbers, but still don’t know how to proceed. Can you help with some contact information and/or advice on how to begin? Thank you so much. Victoria