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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)

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@johnbishop

Hello @lynnejoy, welcome to Mayo Clinic Connect. Thank you for posting...it's a good start to advocating for your own health. I have idiopathic small fiber peripheral neuropathy. It's mostly in my ankles and feet and I've had it for 20+ years. I only have the numbness with my neuropathy and that's bad enough. I know it's hard with both pain and numbness. I take over the counter supplements that focus on providing the nerves the nutrients they need. I found the protocol of supplements in a closed Facebook group. It has helped many others with pain and allowed them to taper off of the drugs. That said, there is no cure for neuropathy so it's just treating the symptoms. Even though it's helping me, it may or may not work for you but it's worth the try. If you want more information, you can find it in my earlier post where I shared my story here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985.

I'm tagging @artscaping to see if she might be able to offer some suggestions that have worked for her.

You mention you have neuropathy. Have you had any neurological examinations or tests?

P.S. -- The first post is always the hardest. I'm glad you took the step. Keep asking questions. Learn as much as you can about your health conditions and keep advocating for your health.

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Replies to "Hello @lynnejoy, welcome to Mayo Clinic Connect. Thank you for posting...it's a good start to advocating..."

Thankyou John , yes Iv had all the tests and will try anything to help with this condition , I’m also having acupuncture too but I don’t think it’s doing much and expensive too .