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I am 75 and have carcinoid tumors NET in lungs
Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (128)Comment receiving replies
@californiazebra It was a long rabbit hole I went down. Most of it had to do with hormone levels that were never corrected that ended up causing something else because of operations. Like the shots I'm on are hormone related. I asked my doctor if having PCOS would be affected by them. The doctor said no, but AI said yes. Just because you have a total hysterectomy doesn't mean you don't still have the problems that come with PCOS. The shots themselves can mess up your insulin and thyroid levels. I mentioned my mom and grandmother having Paget's disease of the breast. Very rare. Ductal carcinoma is related. I wish I had my mother's medical records.
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@nannybb
PCOS is a whole syndrome so even removing my ovaries didn’t fix everything. I don’t see that Paget’s is neuroendocrine, but rarely can be related to another neuro condition. I’ve been using AI a lot and while I have received some great information, I’ve also noticed it’s programmed to be very agreeable with you so it wants to please when you’re looking for ways to connect the dots. It can also contradict itself in the next conversation we have on the same topics. It’s all about how you phrase the question. Just for fun, I just asked AI if toe cramps lead to cancer. It answered while they don’t directly lead to cancer it can be a sign of metastatic cancer in the bones. Again, it helps you find any link. So now everyone with a toe cramp may worry they have terminal cancer. Be careful of the one in a million cases responses.
Like so many of us, you likely have many different medical conditions and are wondering if there is a common link to all of them. Maybe some, but probably not all. I know it’s hard not to worry. Just keep up with your screenings and make sure you’re still enjoying fun stuff in life outside the medical stuff. We don’t want to just survive, but to thrive. ❤️