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I am 75 and have carcinoid tumors NET in lungs
Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (128)Comment receiving replies
@californiazebra Yes! Perfect! But I would still rather catch it early, which is why I like the scans every six months. I hate to think of a growing for a year without me, knowing. Especially because by the time they discovered mine, incidentally, one of the tumors in my right middle lobe showed some malignancy. I don’t like seeing that word, but it stays in my head now. Not like I sit around, worrying about it. But I would rather confront an issue early than wait till it was a bigger problem. But I like your doctors take on it. ! 😁
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@jhhaas
I get chest CT scans every 4-6 months depending on how the last scan looked. When my IR made that statement he was actually referring to ablation not monitoring. His point was that things change slowly unlike an aggressive cancer where a few days delay could be a matter of life and death. My new pulmonologist who has several DIPNECH patients also just told me the obstructions may come and go in their own so he is also in favor of moving slowly to allow them to self-correct. I don’t like invasive procedures so I like to take a conservative approach but not be in denial or negligent. I didn’t think doctors were moving fast enough with my very aggressive breast cancer, but I pull back the reins on this very very slow growing NETs/DIPNECH. You’re on the right track.